Ehlers-Danlos Syndrome (EDS) is a genetic disorder that affects the connective tissues in the body. It is characterized by joint hypermobility, skin laxity, and tissue fragility. People with EDS can experience a wide range of symptoms, including chronic pain, fatigue, and poor wound healing. While it can be difficult to diagnose, recognizing the signs and symptoms of EDS can help you understand your condition and get the care you need. Here are 23 signs that you may have grown up with Ehlers-Danlos Syndrome.
Understanding Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that affect the body’s ability to produce healthy collagen. Collagen is a protein that helps give structure and strength to skin, joints, and other tissues. People with EDS have weakened collagen, which can cause a variety of symptoms, including joint hypermobility, skin laxity, and tissue fragility.
Recognizing the Signs
-
Joint Hypermobility: People with EDS often experience joint hypermobility, which is when joints move beyond the normal range of motion. This can cause joint pain and instability.
-
Skin Fragility: People with EDS may have skin that tears easily, bruises easily, and scars easily.
-
Stretchy Skin: The skin of people with EDS is often very stretchy, and can be pulled away from the body easily.
-
Easy Fatigue: People with EDS often experience extreme fatigue and need more rest than most people.
-
Poor Wound Healing: People with EDS can experience slow wound healing and a higher risk of infection.
-
Scoliosis: People with EDS may have a curvature of the spine, known as scoliosis.
-
Easy Dislocations: People with EDS may experience frequent joint dislocations due to weakened ligaments.
-
Chronic Pain: People with EDS often experience chronic pain due to joint instability and tissue fragility.
-
Gastrointestinal Issues: People with EDS may experience frequent digestive issues, such as nausea, vomiting, and acid reflux.
-
Abnormal Blood Pressure: People with EDS may experience low blood pressure or orthostatic hypotension, which can cause dizziness and fatigue.
-
Facial Features: People with EDS may have distinctive facial features, such as a thin nose, small chin, and large eyes
